Data Collection

Overview

This page outlines ALZ-NET data collection resources, application details and trainings, and data access and request links. For additional guidance on data collection or data management queries, please contact the ALZ-NET Operations Team at alz-net@acr.org

Case Report Form (CRF) Packets

Download Baseline CRFDownload Follow-up CRF

  Latest Version: March 2025

A patient’s electronic medical record may serve as source documentation as an alternative to paper-source documentation in ALZ-NET. Please consult your local source documentation requirement guidelines for more information.

Data Collection Applications

ALZ-NET PortalMedidata Rave TRIAD

For technical assistance with the applications, email alz-net@acr.org

ALZ-NET uses three different ACR applications for case registration, ongoing data entry and image submission.

  1. Case Registration - ALZ-NET Portal
  2. Baseline and Follow-up Data Entry - Medidata Rave
  3. Image Submission - ACR TRIAD is the secure image and data platform used to transfer imaging exams and associated radiology reports of enrolled patients.

Training Modules and Helpful Resources

Data Access and Requests

ALZ-NET Study leadership is finalizing the data access and request process for ALZ-NET but will be posted on this page when available.

Additional Resources and Policies

 

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