Data Collection

Overview

This page outlines ALZ-NET data collection resources, application details and trainings, and data access and request links. For additional guidance on data collection or data management queries, please contact the ALZ-NET Operations Team at alz-net@acr.org. 

Case Report Form (CRF) Packets

Download Baseline CRFDownload Follow-up CRF

  Latest Version: August 2024

A patient’s electronic medical record may serve as source documentation as an alternative to paper-source documentation in ALZ-NET. Please consult your local source documentation requirement guidelines for more information.

Data Collection Applications

RMSMedidata Rave TRIAD

For technical assistance with the applications, email alz-net@acr.org

ALZ-NET uses three different ACR applications for case registration, ongoing data entry and image submission.

1. Case Registration - Research Management System (RMS) 
2. Baseline and Follow-up Data Entry - Medidata Rave
3. Image Submission - ACR TRIAD is the secure image and data platform used to transfer imaging exams and associated radiology reports of enrolled patients.

Training Modules

• RMS Training
• User Registration and Data Entry Overview
• ALZ-NET eCRF Training PowerPoint, August 2024 Powerpoint
• Recent Updates – Migration 7 eCRF Training, August 2024 PowerPoint 
• Brain Imaging Submission Instructions

Data Access and Requests

ALZ-NET Study leadership is finalizing the data access and request process for ALZ-NET but will be posted on this page when available.

Additional Resources

• An Introduction to Real-World Data & Real-World Evidence: A Virtual Training Series for the Patient Community
  • Sponsored by The National Health Council (NHC) and the Duke-Margolis Center for Health Policy